Wonder Woman I am not! by Jenny Foster

Ewan was diagnosed 282 days ago, or 40 weeks and 2 days ago or 8 months and 20 days ago… Wow – In that time I could have had a baby!!!

The realisation of this time span hit me this morning when I was kicking myself for getting down in the dumps that Ewan’s new insulin regime hasn’t been an over-night success – yes a whole new life could have been created since his diagnosis but I have to keep reminding myself that in the life of someone with diabetes, we are still at the morning sickness and not-yet-looking-pregnant, just fat stage!

Everyone out there in cyber diabetes world must have had many moments like this in their life. Like us, you could have had a change of regime or maybe you have had a bigger change like from injections to a pump or perhaps, it’s just been a tweak in diet or exercise. We’ve all done it, pinned all our hopes on this change making an instant improvement in our control and our life and more often than not we’ve been met with immediate disappointment. When will we all learn not to build our hopes up?

After 8 months of battling with the twice daily regime, balancing Ewan’s carb intake with his coeliac disease and his insulin mix, we finally took the plunge to change his regime to basil/bolus, MDI, multi-injection (whatever you want to call it!) 5 days ago.

With 2 weeks of Easter holidays ahead of us and being a pretty intelligent, pro-active and sensible lady, I thought I would crack it straight away and that we would have days of amazing control from the off-set, but how wrong I was. His control is still unstable and now he is injecting 4 or 5 times a day instead of just 3. Have I made a mistake making this change?

Deep down I know that immediate successful control was a totally unrealistic expectation but sometimes I think I am Wonder Woman, that I can successfully tackle anything and always be in control. Those Wonder Woman moments do ‘wonders’ (see what I did there!) for my determination and commitment to dealing with Ewan’s diabetes but when reality hits, those moments do not do a lot for my confidence!

I have to stop striving for super hero style perfection and be satisfied instead with near perfection and a happy little boy.

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I am so sorry I have only just noticed these comments …. (only almost a yaer after they were posted!!!) – Need to find a way to be alerted when I receive a comment. If you guys are online and would like me to respond to anything you wrote in your comments especially you Emma – leave a reply and I’ll keep checking in!!

Being 8 months or so since you commented, I hope things have a moved on a bit for you both – I would love to hear an update!

Sorry again for the delay!

Jen xxx

Hi Jenny,

I enjoyed reading your blog, it’s interesting to see others’ experiences with what is now an everyday consideration. I have two daughters Nicola 13 and Katherine 11, diagnosed in Feb 2010, both still on two injections a day. Like you I have pondered, hummed and harred, should we go onto MDI?? But although it’s a guessing game, and we often get it wrong, their HbA1c’s, taken every three months, are good, both under 7 at last clinic. So I think why upset something that works?? Considering the pump now, older one
does not want it, the younger one does..My older daughter has hypothyroidism and fibro mialgia, only diagnosed since the onset of D and is still having ongoing tests for other problems. Because of not knowing what is round the corner, I am loathe to change the routine we have going… but the possibility of having even ‘better’ control on MDI is in the back of my mind… more humming and harring…!!!!x

Hi Jenny,
I really enjoy reading your blog, as I am in an identical position to you. My daughter has had type 1 for 5 months and she was officially diagnosed with coeliac disease 3 weeks ago. She is on multiple injections and we have had quite good control most of the time. Her Hba1c was 7.5 at her last blood test and at diagnosis it was 9.5, so that was a good improvement. But…….. it does seem like just as things are quite stable, everthing goes totally haywire. Over the Easter hols, her blood sugars were all over the place for about 3 days and trying to figure out why was a total nightmare. One night, after having highs most of the day and feeling quite ill, I tested her in her sleep at 9.30 and her sugars were 26.4 and then when I tested again at 11.30 , they were 2.9! I had to wake her up and try and get some orange juice down her. I felt awful about it. Now, they have stablised again , although she is still suffering from quite a few hypo’s. When Ewan went on to the gluten free diet, did you see a change in his sugars? And being slightly further down the line, have you got any good tips how to manage both conditions. We have had zilch help from any dieticians from our local hospital. I have joined coeliac uk and they have sent the all the welcome pack. Do you give Ewan gluten-free oats? Sorry to ask so many questions, but I always feel the real experts are the parents and people who live with these conditions every day. Thanks!