National Paediatric Diabetes Audit – guest blog by Deborah Christie

We have a guest blog today from Deborah Christie – a clinical psychologist who is calling for as many people as possible to take part in the National Paediatric Diabetes Audit. Please read her blog post and make sure you take part. This is your chance to help shape and improve diabetes care for young people. Please read and share to get as many people as possible to take part.

“Most of us would be a bit surprised if we went for dinner and didn’t get asked what we thought of the meal. It would be unusual if we stayed in a hotel and didn’t get an email asking if we were happy with our stay and intended to recommend the hotel to a friend or stay there again. Why then do you rarely get a chance to comment on your visit to your diabetes clinic? Did you see who you wanted to? How long did you wait? Did you get the right kind of information? Would you recommend your clinic to a friend? If you had a choice would you come back?

Parents of over 23,000 children and young people in England and Wales living with diabetes now have an opportunity to tell their team about the things that matter to them. The patient reported experience measure (PREM) is not asking if you are satisfied with your team or if you like them. We are asking you to tell us about your actual experience to see how many people are getting the service they are entitled to.

The questionnaire is part of the National Paediatric Diabetes Audit. You will be able to see what the average HbA1c is for your clinic as well as how you and the other families that attend the clinic experience the care that is offered.

If you haven’t already been given the questionnaire you can ask your team if they are taking part in the survey. Every diabetes health care professional in the country should know about the project. We would really like to know what you think. Like Goldilocks we want to know if it is too much, too little or just right.

This year we are asking you to complete a paper questionnaire, but would you go on line to complete it? Let us know! How often do you want to be able to give us feedback? Should it be like when you go to a hotel and after every clinic visit you get an email asking you about what you thought of the experience?

Your honest feedback will help diabetes teams get better. We need to know what you think so we can do something about it. Please email or tweet me your thoughts.”
@Drdebs2110 on Twitter

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Is there anything in particular that we can help you with, Sheelagh?

Speaking to your healthcare team should always help, but there are other places that you can get support and advice from too.

Our Diabetes Support forum is a good place to go, as well as our Facebook page. In both these places there are people who are kind enough to share their experiences and offer help and advice.