Diagnosis – by Jen Grieves


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Jen has been busy making her latest video blog for us, this time talking about her diagnosis. If you missed her introduction last month, you can catch up here.

Over to Jen…

Tell us about when you were diagnosed – how old were you, what happened, where were you? You can read a bit more on Jen’s take on her diagnosis over on her blog, Young, Fun and Type 1.

Huge thanks to Jen again for doing this for us. We look forward to the next instalment!

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After watching the video – which did make me laugh at points where I saw similarities with myself – I thought I’d comment and add my diagnosis into the mix…

… I can’t exactly recall for quite how many weeks I’d been feeling a little bit under the weather, or quite exactly how long I’d been drinking more and peeing more, but the few days leading upto me being diagnosed really said it all. I had been off school through not feeling good, but now we were on holiday over the Christmas and New Year period, looking very gaunt, and more-or-less permenantly attached to the toilet. Making things worse was the fact that I was drinking bottles and bottles of (sugary) Coke, which in hindsight was pushing the blood sugar up even further, and making me drink and pee more. Then came those accidents in the middle of the night. At 14 I really shouldn’t have been having an accident in bed, but hey, it was happening. Being that my Granddad was also a Type 1 diabetic, something dawned on the family that they probably should be getting me checked out at the doctors, so off I was dragged to the Emergency Walk-In Centre, pretty much knowing what they were going to say anyway by this stage.

At the clinic, I was called in to have a finger-prick test by the nurse, who nodded knowingly and told me that I had better go through to the doctor. Not content with that result the doctor decided he wanted to test my blood sugar again, and so on he went. Would have been nice of him to use the finger pricker, but no, he proceeded to manually stab a lancet into my finger and do it that way. With a look at the reading he proclaimed to my parents (who had insisted on coming in with me) that “of course he’s diabetic” and that I could have gone into a coma and died aready through the blood sugar being so high (36 as it happens – and although I’ve had some moments where I’ve binged on sweets since, it’s thankfully never been that high again!).

Off I was whisked to the hospital’s paediatric ward, who were waiting for me, for them to sort me out. I remember more tests being done on me here initially, along with the fact that because my blood sugar was so high, and my mouth so dry, I could only manage a few words before my tongue stuck to the roof of my mouth and I’d have to take a drink of the now ‘sugar-free’ juice I’d been provided with.

They were very attentive at the hospital and very reassuring. It was nice to speak to the Consultant who had been called in especially to see me since it was around 7pm now, and since it was also 29th December. During our chat, despite being told by a nurse earlier that they’d probably give me a dose of insulin via the IV in my hand initially, the Consultant announced that he was going to help give me my first injection. And I guess that’s where all of the daily injections began (initially 2 injections per day with Mixtard, but in later years moving onto 4 injections per day of NovoRapid and Insulatard making things a bit more manageable). He asked me take down my trousers so we could get access to my upper leg, asked me to hold the insulin pen whilst he too held onto it over my hand, and although I was attempting to hold back for a minute whilst I’d psyched myself up, he plunged the needle into my leg and delivered the dose. We chatted some more, and he even encouraged me to take the opportunity to eat the McDonalds that my dad was offering to go for. I didn’t, I just wasn’t hungry. Thirsty still though!

Spending the night in hospital, I made friends with a couple of the other people in my ward, but took the time to learn how the insulin pen worked along with the blood testing meter. It was a bit of a novelty I guess (if you can call it that!) pricking my finger and seeing the reading.

The next day I was told that if I showed that I could at least eat breakfast and some lunch I’d be discharged. So having managed a yoghurt, I tried to force some awful ‘vegetable crunch’ down me. After that, with my new bag of extras (needles, insulin…) I headed home.

I guess the day of diagnosis and of discharge will always stick in my head. 29th December 2000 and 30th December 2000 respectively. 2 Days ’til New Year 2001. Needless to say I didn’t celebrate too much that year!

I guess everything after that was a learning curve as Jen says in the video. Me learning what I could do or couldn’t do, and other people (friends, family, even teachers) learning what I could do or couldn’t do too, but what they needed to do should I ever not be able to help myself if blood sugar was low. And I too carried a packet of dextrose energy tablets with me faithfully everywhere I went whilst at school. Moving to college on the day that for some reason I didn’t have a dinner hour but had back-to-back lessons, I was allowed to eat durning one whereas others weren’t.

Fast-forward 12 years at the age of 25, I guess I feel like I’ve mastered most things to do with Type 1 diabetes now, and thankfully there has never been a situation to date where I have been unable to identify my own hypo and take action on it. But during that time things have changed too. I wonder what other people’s experiences have been like in this regard, or Jen’s if you’re reading. My hypos now give me much different ‘warning’ signs than in the years after I was first diagnosed. I’d have trouble speaking coherently then if my blood was below 3 or I’d be sweating profusely and be shaking. Now, my ‘warning’ signs tend to be more subtle and only really noticable to me. I surprise myself and my family that I can quite comfortably have a coherent conversation with my blood as low as 1.7 – although admittedly at that level the conversation generally focusses on the fact that I need to eat something or drink some lucozade!

Hi

I have recently been diagnosed with Type 2 diabetes. I am still trying to come to terms with everything. The 2 biggest problems i am having are my diet, i am trying to control it with my diet and also motivating myself to keep going to the gym and walking to work.

I have tried to get an appointment with a dietitian but the doctors are unwilling to send me or even give me any details or a dietitian.

Can anyone point me in the way of any decent websites or books that a novice cook like myself could use – something very simple that i could use in a slow cooker.

Any information would be grateful received

Many thanks
Alan

Thanks for the video. I was diagnosed about 18 months ago. I was told I had Type 2 Diabetes, was given a leaflet and told I would see a diabetic nurse in time.

Afterwards I just went to work as usual but later that day, when my wife came to pick me up from work… the minute I saw her car come around the corner I couldn’t contain my emotions. I remember feeling quite silly and that somehow I’d let her down by having diabetes.

I don’t think I’ll ever forget that day.

Thankfully, with her support I’ve come to terms with things and rarely feel upset about it now.

It’s nice to hear and see people like yourself talk about your experiences. I’ve never really talked to any other people with diabetes so blogs like this really offer something.

I have type 2 diabetes ‘problem’ my problem is with my oral medication my ‘problem’ is standardisation – I’ll give an example my medication is
Metformin 500mg 2 x twice a day, Lisinopril 5mg 1 per day, Slimvastin 1 at night. these medications Lisinopril and Slimvastin are usuall pink tablets 1 small 1 substantially bigger therefore easy to distinguish.

What I find is that depending on the supplier these tablets come in either white or pink and also different sizes and can lead to confusion especially to my carer who may set out my medication for me, she has become conditioned to Metformin(White) and Lisinoprol (small pink) at the start of the day and Slimvastin (large Pink) at bedtime.

Why can’t pharmaceutical companies adopt a standard of coloration of medications used when treating a single ailment e.g if 3 tablets are used in conjuction for treatment a main tablet being ‘white’ and suplementary tablets being coloured pink / orange /yellow so that they can be instantly recognised and dispensed by carers/users. In my experience tablets for type2 diabetes are used quite frequently by an aging population and would possibly help prevent ‘accidents’ in administering medications.

Now this may require organisational standardisation but wouldn’t be too difficult given an awareness of this problem all medications have an element of ‘danger’ if misused surely this would help prevent this. Or am I asking to much.

I had spent a summer feeling very tired, I was aching, and my cycling performance had dipped. In July my wife gave birth to our first child and then I felt even worse! Lack of sleep got the blame this time…but then I lost 11 pounds in weight in as many days. Wow, what’s going on, better see my GP. My GP did not hesitate to test my BG and diagnose type 1 diabetes. This was on a Friday morning. He told me to avoid carbs until I could attend the local hospital on the following Tuesday. Easy I thought. Upon checking food labels at home I was amazed to find sugar in mustard, pickle, HP sauce – all those things I liked to eat! No-one in my family has diabetes and I cannot trace any historic condition in my family. I did not know what diabetes was at diagnosis but 16 years on I am a bit of an expert…but not a very good one! Hey-ho.

I was diagnosed quite matter of factly over the phone,it was just like ,oh mrs raynor you have type 2 diabetes,would you like me to put you down for the desmond course,or would you like to come and see me,i can make you an appointment for a months time.i was quite taken aback as i hadnt got a clue as to what i should be doing or eating,and i had to wait a month to find out.